References
If you are interested in learning more about similar projects, don't hesitate to visit the following links.
James Lind Alliance
The James Lind Alliance (JLA) is a non-profit initiative created in 2004. It brings together patients and clinicians who work together to define the "Top 10" of unanswered questions about the effectiveness of treatments for each disease.
Scientific publications
- Brown K, Dyas J, Chahal P et al. Discovering the research priorities of people with diabetes in a multicultural community: a focus group study. Br J Gen Pract 2006; 56: 206-213.
- Crowe S, Fenton M, Hall M et al. Patients’, clinicians’ and the research communities’ priorities for treatment research: there is an important mismatch. Research Involvement and Engagement 2015; 1.
- Gandhi GY, Murad MH, Fujiyoshi A et al. Patient-important outcomes in registered diabetes trials. JAMA 2008; 299: 2543-2549.
- Sacristan JA, Aguaron A, Avendano-Sola C et al. Patient involvement in clinical research: why, when, and how. Patient Prefer Adherence 2016; 10: 631-640.
- Tallon D, Chard J, Dieppe P. Relation between agendas of the research community and the research consumer. Lancet 2000; 355: 2037-2040.