If you are interested in learning more about similar projects, don't hesitate to visit the following links.
James Lind Alliance
The James Lind Alliance (JLA) is a non-profit initiative created in 2004. It brings together patients and clinicians who work together to define the "Top 10" of unanswered questions about the effectiveness of treatments for each disease.
- Brown K, Dyas J, Chahal P et al. Discovering the research priorities of people with diabetes in a multicultural community: a focus group study. Br J Gen Pract 2006; 56: 206-213.
- Crowe S, Fenton M, Hall M et al. Patients’, clinicians’ and the research communities’ priorities for treatment research: there is an important mismatch. Research Involvement and Engagement 2015; 1.
- Gandhi GY, Murad MH, Fujiyoshi A et al. Patient-important outcomes in registered diabetes trials. JAMA 2008; 299: 2543-2549.
- Sacristan JA, Aguaron A, Avendano-Sola C et al. Patient involvement in clinical research: why, when, and how. Patient Prefer Adherence 2016; 10: 631-640.
- Tallon D, Chard J, Dieppe P. Relation between agendas of the research community and the research consumer. Lancet 2000; 355: 2037-2040.